I’m sorry for the lack of updates in the past week. I wanted to post about this yesterday but it was a very long day.
Sunday night I left Kaitlin’s (girlfriend) house 3 hours earlier than normal. My chest was tight, I was short of breath, and my body was achy. Something had to be done. Later that night I told mama that I needed to be admitted and that I didn’t want to get any sicker than I was already. The next thing to do was email my doctor to see when I could be seen because I was feeling horrible and was getting worse everyday. He told me that I could be admitted yesterday (Monday) and we could have a direct admit instead of going through clinic which would’ve taken longer. People were wondering if I would go the the adult service with this admission but I haven’t had my appointment with them yet, so for now I’m still in pediatrics! When I got up to my room one of the first things they did was get my weight, before I got on the scale I was pretty excited to see how much weight I had gained since my last clinic visit where I weighed 120 pounds (54kg.) I was devastated I had lost a little over 6 pounds (2kg) after starting a different appetite stimulant. I thought with eating like a horse and keeping up with my g-tube feeds that surely I would have gained some more weight. I guess when you’re sick no matter how much you eat you’ll lose weight.
I was hospital free for 6 months. Considering a couple of years ago I could barely go a month without being admitted it’s quite an accomplishment. I had set a goal for myself after the last string of 3 admissions in 3 months, that I wanted to stay out for a full calender year. Since then I’ve stayed out for six months twice already. Maybe if I could just get over that six month hump it’ll be smooth sailing for the remainder of the time! I’ll have another update soon!